Negative for MTB.

Our IDS already somehow expected it. She told me before we were discharged that she is still confident it is TB even if GeneXpert comes negative given the surgical pathology report.

Maybe this is false negative???Attached with the GeneXpert result is the waiver signed by Twin A’s dad, saying that the result could be inaccurate due to the less than ideal or below-lab standard specimen submitted.

But this does not help my anxiety. I was told at TB DOTS that GeneXpert is already highly sensitive and I feel the AFB tests could be negative as well…that they may not have enough bacteria to work with or may not even have cultured any MTB 😓…I have yet to claim the AFB, GSCS, and TB PCR from PGH Medical Research Lab. And it my not tell me anything, too.

What’s worrisome is my daughter’s uric acid is still persistenly high despite regular intake of allopurinol. Uric acid as of yesterday is 9.18 mg/dL, normal value is 2.6-7.2.

But I was told at TB DOTS that it’s not that yet too worrisome since it’s not 5x higher than normal.

FNAB result and cytology report are not accessible to me yet…

The problem is our IDS took a leave of absence this week and we were scheduled to have the check up on Thursday. 😱 And I have been referred back to our hema-onco regarding the high uric acid.

The only thing that is keeping me hopeful is that Twin A is improving, ergo, the anti-TB med is working. The fact that she can walk back home from church is already a huge improvement over how she was two to three weeks ago.

But then, the threat of lymphoma is still there. My fear is that we might become complacent because we relied on the surgical pathology report, believing it is TB when we might be delaying treatment of possible lymphoma.

But I can’t do anything about it until the other test results, especially the FNAB and cytology reports come in.

Maybe I could request for an MRI, earlier than scheduled, which is originally set two months later? What would an MRI reveal? Maybe nothing. Maybe it would show less inflamation or the level of inflammation is the same because the anti-TB med is not addressing it?

I am killing myself with worry.

To keep me calm, I bought myself ice cream. That’s all I can do.

And pray.

I am going nuts.

Showed up at our local pediatrician’s clinic to request for a uric acid test order and also to update her on the diagnosis and what are the home care orders. She said Twin A’s tummy has shrunk compared to the time she sent us for hospital admission a month ago. And she assured me that it’s ok, the joint problems are normal since it has only been more than a week since my daughter is back on allopurinol.

Classes were suspended today because our stupid mayor heeded the call of irresponsible students (NOT from our university and the private schools around/within the university) who chanted “class suspension” for Monday because they attended the hotspring festival last Saturday and they were out until the wee hours of Sunday for the revelry. 🤬 Because the mayor wanted to be popular and “cool”.

And to think he already suspended classes on Friday in preparation for the festival. 🤬🤬🤬

Ghad, no wonder the reading comprehension and general literacy and numeracy of Filipino kids today are the lowest in Southeast Asia. Wasting precious school days for something stupid like staying up to party.

Yes I partied hard in my youth but I made sure I still come to class, even if I was so wasted and hungover. Because that was my only profession at that time—be a full time student, so I better haul my butt over to class, even if my blood vessels still contained 90% alcohol.

Yes, I sound like an old crone. I don’t friggin’ care. I care about not producing vapid and shallow people who only know how to TikTok and be “content creators” and post several selfies a day, everyday, but they couldn’t spell properly, even in Filipino, and resort to writing using jejemon language 🤮. I’m triggered. As an educator who had come from a family of educators, this really pushed my wrong buttons.

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To melt my anger today, I just sought the company of my cats in between editing and blasting emails.

Meanwhile, my solar outdoor light is working well but I need to buy another one for the lower staircase. Then solar fairy lights for the balustrades and the trees.

I’ll see tomorrow if I encounter deep discounts (lights and other DIY stuff, and a new vacuum cleaner) in Filinvest Alabang tomorrow after I claim Twin A’s TB GeneXpert assay and MTB PCR results from RITM.

Even though I know that my daughter has TB and the meds are working wonderfully, I still have this debilitating anxiety over the possibility of it might not be TB…so I have apprehension about what I would be reading from the results from RITM tomorrow. What if the AFB smears show it’s negative???

But it’s there staring at me in the face, the surgical pathology report (of the lymph node from the biopsy) says chronic granulomatous inflamation consistent with a tuberculosis etiology. This was the basis of our IDS’ order to bring back the anti-TB meds. So I shouldn’t doubt… Maybe I should have contacted my pathologist friend in PGH and asked him to do the pathology work for us, to give me some comfort. But then probably it won’t make any difference. Granulomas are granulomas with necrotic debris. Consistent with the CT scan that showed there is central necrosis. The misreading in our first hospital said there are nodules on the liver (a characteristic of lymphoma). But CT scan reading in PGH said there are no nodules on the liver but rather they are calcification (as told to me by our IDS fellows). Dr. Google told me calcification is caused by caseous necrosis—a very distinct characteristic of TB. While lymphoma may exhibit necrosis, it does not result into calcification.

But I shouldn’t believe Dr. Google.

So I’m still terrified. What if GeneXpert, PCR, and AFB show negative for MTB? Lymphoma and TB can coexist in one body, according to literature. That’s why our hema-onco is still not letting us go.

I should sleep now. I am creating my own monsters in my head.

Saturdays are for chores and errands. Sundays are for families and friends. There should be another day, like Monday, for self care. Like a whole day for you to recover your strength and sanity for the upcoming week.

Last night I cooked spaghetti and meatballs for my brother’s family here in my house after Twin I did our grocery shopping last Friday evening. Prior to that, my girls attended the “hangout” for high school kids at church and everyone was waiting for Twin A’s first public outing since being discharged from the hospital. She did well, considering they had to walk back from church to our house, together with their kuyas, because traffic was bad so I couldn’t pick them up in my car. It’s nice to have your male cousins protecting you. ❤️

Twin A looked very frail so no one wanted to bother her that much but she mistook it as snubbing, like no one wanted to do anything with her. She was so sad coming home. Twin I said, “why didn’t you tell me?! We thought you wanted to be left alone that’s why you chose to stay in a corner.” I told both of them to communicate better and to tell each other their needs, especially when the time comes when Twin A goes to school in a week’s time.

I also spoke with a high school classmate of mine after church service this afternoon and I hugged him and gave thanks for leading the prayer warriors all throughout our three-week ordeal. The church also sent their care/get well package to Twin A last Friday.

A fellow reporter and his wife sent Twin A also their get well gifts, drove all the way here (since they’re dropping off their niece, who is a freshman here).

All my close friends had been keeping tabs on us. Fairy gaymother K had been asking me every other day how we are. While we were n the hospital, he has been calling me and trying to keep me sane.

We are loved. ❤️

I took it easy today and just consumed leftovers or made instant stuff since I want to take a break from cooking. I should just have ordered Grab or Food Panda instead. 🤔 I just wanted to rest…

Ah yes, this power washer is part of my hardware/DIY store hauls last Friday. I had been planning to buy this for quite a while since I need this to clean my stairs, my carpets, and now our water tank. Need to drain and clean our tank every month, clean the tank walls with a clean mop and cleaning chemicals every 6 months, and with Clorox once a year.

I wonder if there are water tank cleaning service providers around here…oh there is! Will contact them tomorrow. *sigh* The headaches of homeownership.

As added security for my home, I bought a 25-watt solar-powered floor light to illuminate my stairway to discourage intruders and alert us if there are suspicious movements at night. I have a lot of outdoor lights on my eaves but they consume too much power so I can’t leave them on for more than 8 hours every night.

I will be returning to Handyman the dead bolt that I bought and have it exchanged for a barrel and chain lock instead. My contractor said my current lock system is already deadbolt so it’s better to have another system for redundancy. I also plan to install solar-powered torch lights for the garden and pathway.

Aaaaannndddd CCTV camera.

Well, we have a new word added to our lexicon: vog. It’s volcanic smog that is now smothering the provinces south of Metro Manila. It’s really gloomy here in our town and I wonder if it’s because the vog reached our side of the world.

But the heavy smog blanketing Metro Manila now is not related to Taal Volcano’s spewing ash this week. Phivolcs said it is just plain smog that didn’t rise up into the atmosphere due to thermal inversion.

Smog. Smog. Smog. Pollution basically.

I am soooooo glad I’m out of Metro Manila or else my kids and I would be having asthma attacks by now. The government cancelled classes due to the heavy smog hovering over the metro…just like what Jakarta experienced a month ago.

Meanwhile, I bought Kimchi these fluffy keychains after I couldn’t find her original one. We lost it when we moved. Now she happily tosses one of these when she’s in the mood to play by herself. She’s soooo cute when she does that. 😍

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There had been a spate of robberies in our town in the past few weeks or months. One of my BFFs had experienced one break-in their apartment when we were still in the hospital. The thief had the audacity to enter their apartment while the homeowners are still inside and took my friend’s husband’s cellphone in the living area. They caught the perpetrator on CCTV of their neighbor and had come out with a police blotter for the suspect.

Things turned for the worse when a former dean in one of the colleges in our uni was killed by a thief that broke in their home two days ago.

Criminals had taken over our town once again. I remember when this incumbent mayor won his seat the first time around, drug addicts were running around freely and the local police was in cahoots with the drug pushers and druglords. There was a series of killings of students and children…and my TV network sent me here for a week-long reporting of the incidents. I remember the showdown I had that with Mayor G’s administrator, who barred me from interviewing the mayor about the drug-fuelled student killings. I had the temerity to call my brother on my mobile so loudly so that everybody in the municipal hall can hear. I told my brother, “Kuya, bring me a pillow, mat, and a flat sheet. I will sleep here at the Office of the Mayor until Mayor G has the guts to show his face in this office!” I was very much prepared to do that and they know that a TV crew was just outside…they would be losing face if we broadcast that the mayor was never to be seen nor heard when the whole town is crying out for justice.

Why did those things happen? Mayor G was an absentee mayor. Because you see, he was not a native; he really resides in Makati and was seldom in office. He just satisfied the 6-month residency rule by building a house somewhere and so he became eligible to run for office. His father was a close associate of the husband of former President Gloria Arroyo. Mayor G’s father was recently found guilty by the Sandiganbayan of corruption when he was still the head of the Philippine Amusement and Gaming Corp—the milking cow of any Philippine president.

Before this Mayor G took a seat, we had a good mayor, the one who kept peace and order. Mayor P was the one who banned the use of plastic 20 years ago and cleaned up our own version of Smokey Mountain. He was a no-nonsense administrator who had the police by its neck. Some say he has some strange racket going on, like his brother is a drug lord, that’s why he has the criminal syndicates under his thumb. I’m not sure if it’s true. Haven’t tried investigating.

Mayor P was unbeatable every election but there was a time he had to run for vice governor because he already maximized the term of office—three terms—for mayor (or for any elected public official in the Philippines). That’s how Mayor G was able to have a chance to occupy the post. But because he was so bad at it, Mayor G only had one term and the old Mayor P was back.

But Duterte had Mayor P killed by a sniper in December 2020 at his office. Duterte never denied his involvement—on TV.

Now Mayor G is back because he ran under the Marcos banner. People are stupid. Same shit we went through more than a decade ago is happening again.

I think I may have to bring my mainstream media friends back here…

It’s the 51st anniversary of the declaration of Martial Law, the one that allowed the Marcoses to stay in power, absolute power, for almost 20 years. Many have been imprisoned and killed. Social media, with the careful machinations of Cambridge Analytica, erased the atrocities the Marcoses have committed against the Filipino people.

That’s why they’re in power again, ransacking the country again with billions of “confidential funds” appropriated in the national budget. Those confidential funds could have gone to government hospitals, to the patients in charity wards of the Philippine General Hospital, Lung Center of the Philippines, National Kidney and Transplant Institute, and Philippine Heart Center.

But guess what? Their budgets were cut to make way for these so-called “confidential funds” that do not go under the scrutiny of the Commission on Audit.

GREATEST ROBBERY OF A GOVERNMENT.

Late dictator Ferdinand Marcos Sr. received this distinction from the Guinness World Records after the Philippine government identified a total national loss worth $5 billion to $10 billion from November 1965. #NeverAgain #NeverForget pic.twitter.com/FOln147xss

— Inquirer (@inquirerdotnet) September 21, 2023

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The last early breakfast for my 7th Grader for the week. Whopeee!

Sigh. It’s hard raising tweens/teenagers. The moodiness, the dramas…it’s hard to explain now. I am emotionally drained because I had a heart-to-heart talk with Twin I. I thought she was mature enough to understand things.

I have a bumpy road ahead. 😩