Lovely to sleep on my own bed. Photo by CallMeCreation.com
Yesterday we indulged because we’re just overjoyed we’re out of the hospital. We had hotpot even though I should be strictly monitoring my calorie intake.
Hotpot for one. Photo by CallMeCreation.com
Then Twin A and my sister shopped before going home, because why not? I’m just puzzled with today’s teen fashion. Who the hell thought that it’s cool to wear your jeans inside out?! Yes, SM is selling jeans with the seams on the outside! Thank goodness my daughter isn’t into this kind of trend.
Jeans worn inside out 🤦🏻♀️. Photo by CallMeCreation.com
Because I was away for several days, Kimchi became clingy. She follows me wherever I go/station myself.
Cat loaf inside a bread paper bag. Photo by CallMeCreation.com Cat loaf. “If I fits, I sits,” Kimchi says.
Ok let’s start assembling the Ikea dresser Malm I ordered several weeks ago. I ordered two for my girls and they arrived before we went to PGH.
See? Kimchi is here again. Photo by CallMeCreation.com Oh dear. Too many parts. Photo by CallMeCreation.com
Fuck it. I forgot to lock the screws. 🤦🏻♀️ I had to disassemble everything.
Ready for a more comfortable sleep. Photo by CallMeCreation.com
Since the official notice that we will be discharged the next day was super late, I couldn’t book any of my mom’s drivers to fetch us. My siblings have work.
I decided to book a hotel next to Ayala Center to spend another night so my older sister can pick us up today. I wanted to celebrate and have a comfortable sleep after camping in our hospital room’s bench for several nights.
Empty Makati CBD through the frosted glass. Photo by CallMeCreation.com
The four-day long weekend has flushed out humanity from Metro Manila and now I get to enjoy the city without the clogged streets. It took us only about 30 mins from PGH to Ayala Center, which could have taken an hour or so on a normal day.
I plopped on the bed and slept for an hour and a half to make up for the lack of sleep the past few nights. My head was already pounding before it touched the pillow. After convincing my daughter we need to get out and walk, we hopped to Ayala Center and treat ourselves.
Daughter looking for jeans at Landmark. Photo by CallMeCreation.com
We checked out OneAyala, the former Intercontinental Hotel, which Ayala Land converted into a mixed use development. It directly connects to MRT, has four floors of shopping and dining areas, offices and Seda Hotel on the top floors, with the ground floor serving as a transport hub. I was surprised that OneAyala was huge, remembering how narrow the function rooms in Intercontinental were. Then I remembered there was a road at the back of the hotel and a parking area. Ayala Land claimed those and made one huge building with the ground level opening up to EDSA.
In the activity center, there was a Thayers event that I joined just for the heck of it. I mean, I already have a lot of toners back home (currently using Shiseido) but it doesn’t hurt to get a free bottle and a discount card for purchases at Watsons.
Looks weird. Photo by Twin A.Yey free small bottle of Thayers. Photo by CallMeCreation.com
And every trip to the hospital gives Twin A a reward of Japanese food.
Photo by CallMeCreation.com
I knew people are out of the city when I saw restaurants only half-filled on a Friday night. Even the malls are not brimming with people. Usually the bridgeway connecting Greenbelt and Glorietta is teeming with humanity. Not this time.
After a long walk back to the hotel, I booked a two-hour Zennya massage. How I missed Zennya!
Attending online school. Photo by CallMeCreation.com
Our IDS said they made an initial reading of the MRI scan/s and said they’re clear! The thickening of the colon lining is no longer there and the lymph nodes are all gone. It’s really TB and they have been resolved. Twin A has no malignancy or any symptoms of autoimmune disease, her TB is also gone!
We’re just waiting for the official reading of the scans.
Thank you, Lord!
IDS said during the course of TB treatment, there are instances that lymph nodes will increase as the infection is still putting up a fight (“nanlalaban”) and then they dissipate. Our team of doctors are just making sure nothing is off, especially with quality of tests and reading of scans and test results vary wildly from hospital to hospital. Since Twin A’s TB is atypical, our doctors have to be thorough. Plus genetics is shit.
Part of the thorough examination is the running of TB quantiferon test. Our IDS said she expects it to be negative, otherwise a positive reading means Twin A’s TB strain is drug-resistant. However, the result would be released next week since it’s a holiday tomorrow and on Monday.
I spoke with IDS and hema-oncology fellows on separate occasions/rounds. All of them said the tests are so farall normal, nothing remarkable that would prompt them something is wrong. Even the stubbornly high uric acid is normal. I checked our billing statement to see if they did some blood protein test or CTC or any kind of test to screen for cancer, so far none. I only saw a TB quantiferon test, lactic dehydrogenase (liver? cancer?), erythrocite sedimentation rate >>> which could just be checking for infections?
It’s hard to concentrate on online class and work in this kind of environment.Photo by CallMeCreation.com
She’s going to have her MRI scan tonight, which will determine if there is something big to check/get tissue samples from, hema-onco fellow said. I guess it translates to if there are large lymph nodes present.
Too many insertions. Photo by CallMeCreation.com
I’m storming the heavens with prayers. 🙏 Everything will be all right.
Waiting for the GI relaxant to work. Photo by CallMeCreation.com
I thought we wouldn’t be back like this but here we are. I got a smaller room because I assumed we would be here for only a few days… Keeping my fingers crossed.
Attending online classes. Photo by CallMeCreation.com
Left home at 4 am, arrived at 5:30 am, got admitted and got into the room at around 8 am. X-ray, blood tests, urinalysis, etc done. Scheduling of MRI and biopsy still underway. Much to Twin A’s dismay, she is again inserted with IV.
I’m still left in the dark. I don’t know what they’re thinking. I was able to talk to our hema-oncologist’s fellow tonight and asked, if there’s malignancy, shouldn’t my patient feel sick? She said yes, she should be having fevers and losing weight. But she gained 50% weight within a year and she even had volleyball training this school break and she was fine, I said.
I don’t know if I’m ok if they’re suspecting some autoimmune disease. But I am definitely going to freak out if it’s still malignancy and lymphoma is still in the mix.
Whew, pedia resident said my daughter’s uric acid has gone down to normal even without the maintenance medicine and her bilirubin and other indicators of liver health are all ok. 🥲
We’re just waiting for her creatinine result and off we go to MRI soon!
Hazy sunset after my brisk walk. Photo by CallMeCreation.com
No wonder the atmosphere was heavy, hazy, and very humid yesterday…Taal Volcano is acting up again and the ashes are blowing up this way. The local government has suspended classes today because of the heavy vog we’re having.
Yesterday morning, the world was still fine and I walked to the weekend community market to buy food for the entire Sunday because I didn’t want to slave in the kitchen.
I encountered freshmen college students walking in blocks for what seemed to be a campus tour. It was probably the first time they met their blockmates. Ah yes, today is their first day of classes and it’s better to get acquainted with the buildings or else they will get lost going to their Math 11 class or Crop Science 1. Jumping to one class to another more often than not requires a jeepney ride.
Freshmen taking a break from their walking campus tour. Photo by CallMeCreation.com Photo by CallMeCreation.com
I walked to the market without any umbrella and I really felt the oppressing heat. I sweated so much and I wondered if it was just me or it was unusually humid.
Bought chicken rice for my brunch. Photo by CallMeCreation.com Bought the real deal Ilocano bagnet for the girls for dinner. I just heated it up in my airfryer. Photo by CallMeCreation.comIlocano empanada. Photo by CallMeCreation.com Large NY-style pizza slices for brunch for the girls. Photo by CallMeCreation.com Among the other things I hauled back home was a baguette for breakfast today. Photo by CallMeCreation.com Matcha donuts, baguette, passion fruit tea, iced matcha, chicken rice, wrapped banh mi (for my dinner) pizza still wrapped, chopped bagnet, and pancit palabok for my girls to go along with bagnet. Photo by CallMeCreation.com
This freed me from slaving in the kitchen all Sunday. It gave me the freedom to lounge in my bed before we went to church. I should do this every Sunday, no?
So for today, we’re just stuck here inside because the vog was bad. Our Philippines reporter sent me this photo she took this afternoon in her condo.
It was raining hard. Photo by CallMeCreation.com
She said she can hardly see anything. It rained so hard and it was unusually heavy. Rain mixed with vog has certainly reduced visibility. She told me that España was already flooded. Gee, that means Taft Ave is already underwater as well.
Good that we’re leaving at 4 am later and hopefully my mom’s other driver (the first one bailed out on me) can drive my car. Its clutch + accelerator mix is finicky for those who are not used to driving it. My sisters gave up on my car as they can’t get the proper combination—and to think their cars are also manual transmission.